“... A diagnosis that raises questions, anxiety, fear and, finally, a desperate protest among the parents of a small patient: “No, not my child, there is nothing worse than outliving your children.” Anne-Dauphine and Loic Jullian went through all this when their two-year-old daughter Thais fell ill. The waves long ago washed away the light traces of two small feet and the sand castle that turned out to be the fragile happiness of this ordinary French family.<…> With the terminally ill Thais in her arms, knowing that the chances of inheriting metachromatic leukodystrophy from the child whom Anne-Dauphine carried under her heart are quite good high, the woman decided to give birth. Girl. Will Thais have time to tell her little sister that she loves her before falling silent forever? Will Gaspard be able to throw all precautions aside and play with Azilis? Is she healthy or is a terrible illness just giving her a reprieve? Be that as it may, if you cannot add days to life, you need to add life to days - Anne-Dauphine learned this truth well. And despite the fact that she will die every time one of her daughters comes close to death, her book is the most life-affirming of all ever written!..”